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Paula Evans

Monday, February 11, 2013

1st International Angelman Syndrome Day a Time of Hope for Local Group

The Foundation for Angelman Syndrome Therapeutics, based in Downers Grove, will help raise money for AS research through a nationwide fundraiser at Ruby Tuesday—and with the endorsement of actor Colin Farrell.

Valentine’s Day may be all about Cupid, but starting this year, the day after will be dedicated to the angels.  Friday, Feb. 15 is the first annual International Angelman Day, a time when members of the Angelman syndrome (AS) community will celebrate the successes of the past year and look forward to the future with a fundraising campaign. Ruby Tuesday has partnered with the Downers Grove-based Foundation for Angelman Syndrome Therapeutics (FAST) to donate 20 percent of proceeds on Friday to AS research when diners present a flyer at participating restaurants. Roughly 100 locations nationwide are involved with the fundraiser, including the Downers Grove Ruby Tuesday, 1570 Butterfield Rd. “There’s such a sense of community that everyone …

carrie esposito 7405 richmond

2:55 pm on Tuesday, February 12, 2013

May God bless these beautiful special children.   more ›

Thursday, September 6, 2012

Help Local Angelman Syndrome Group Win $250K in Chase Bank Contest

The Foundation for Angelman Syndrome Therapeutics is in the running for $250,000 in the Chase Community Giving program, but they need your Facebook votes to take the top prize.

Paula Evans didn’t flinch last year when she learned it would take $250,000 to fund a clinical trial for a treatment for Angelman syndrome, a rare genetic disorder that affects her 8-year-old daughter, Ainsley. "I told the researchers, 'Oh, no problem, because we're going to win the Vivint contest and fund ourselves,'" Evans said at the time. And win the Darien mom’s nonprofit did. The Foundation for Angelman Syndrome Therapeutics (FAST), based in Downers Grove, took home the top $250,000 prize in the Vivint Gives Back Project. FAST is at another critical moment—and there’s another contest with a $250,000 prize to help them push AS research even further. The foundation is participating in the Chase Community Giving program, a Facebook …

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